Thursday, August 11, 2011

YAY !!!

Happy Happy !!!
As some of you know I have been complaining about hives ... for months ... since January actually, 8 months. Almost a full term pregnancy. lol. These aren't the spotty itchy hives though ... those I deal with ... every day. I have had those every day since late December. But these are - in addition - big huge swollen spots that burn and sometimes cause big blisters. They can last for days if they are severe. They exhaust me and make me unable to do a lot of things. They come from kneeling, carrying a purse, heat, walking, using a paper punch, applying a foot mask, having a massage treatment, rubbing my arm, wearing a sweater over sleeves, a paper cut, a bug bite, a bra strap out of place, shovelling dirt ... yep, silly things really. They can be on my hands , on the bottom of my feet, arms, anywhere. They are really a problem.
So I have been to the doctor several times, been referred to a specialist for 2012 (yes, waaaaaay in the future), that specialist died, and then I was referred to another specialist. I went Wednesday. I was so nervous the night before that I made lists on paper, I had my symptoms all layed out ... I was so sure I would have to convince the specialist. I had been hearing "Oh, you must have an allergy" for so long. I didn't sleep that night, I ate no breakfast ... I was nervous.
I went in & started speaking and she NODDED. She nodded. She knew what I was talking about and knew I wasn't crazy !! She did some very simple tests, took a biopsy (yes, right there ... cut out a piece of the hive !! UGH !!) , ordered some very specific blood work, and gave me a partial diagnosis ... right there !!! I was thrilled. It is fairly rare and is multi layered. The biopsy and tests will tell more but it's a start !! I am on a MEGA dose of medication for a month and then taper it off a bit for a few more months, then back to see her in 3 months. In the meantime we await the blood and pathology tests.
I didn't feel well when I left ... maybe from the biopsy ;) ... but I was elated !! To have someone say "I know some of what is wrong and can start helping you now. And I will soon be able to figure out the rest of it ... and it can all be dealt with ". I can't tell you what a relief !!!
Happy ! Happy !


AudreyO said...

I stumbled to your blog from Google's next blog feature. It's awesome when a doctor actually knows what's happening. I'm in the process of changing doctors because my daughter had an ear problem. My GP said "oh it's allergies, go home" Turned out it was an inner ear infection. She had lost 40% of her hearing. I was so upset with the misdiagnosis and dismissal of "oh it's allergies" Good luck with this new doctor.

Merrilee said...

That's great news Pam! I hope you get a full diagnosis quickly!

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